| Founder’s
Note |
Welcome!
Thank you for being a part of
our first M:TA newsletter.
It is an exciting time
for this project. For those of you reading this who may not be familiar with Myself:
Together Again (M:TA), it
is a project dedicated to
empowering young women through
the breast reconstruction
process.
M:TA
was created about a year and a
half ago when, I, a young
breast cancer survivor myself,
was diagnosed with stage 1
breast cancer at age 32.
I was newly engaged and
planning my wedding and felt
desperate to know what I would
look like through the process
of breast reconstruction
following a double mastectomy.
I decided to do a
double mastectomy because of
the history of breast cancer
in my family. I could not find any
pictures that satisfied my
need to know how my body would
look rebuilt. Feeling frustrated and
angry I decided it might be
worth my while to have myself
photographed so that other
young women could see
what would lie ahead for them
through the difficult months
of expanding their chest to
prepare for permanent
implants.
I
have to give credit to the
M:TA team who walked me step
by step through the picture
taking process as well as what
has ended up to be a 32 page
booklet, website, and full
time mission to educate women
about breast reconstruction as
well as sharing my experience
along the way. The photographer,
graphic designer, writer, web
developer, web designer,
Cornucopia House Cancer
Support Center, Susan G. Komen NC
Triangle Affiliate and all who
have made M:TA what it is
today deserve the credit for
making this such a wonderful
resource for young women.
When
the booklet was in production
during the spring of 2006, we
decided to change my name in
the booklet to “Denise” to
protect my privacy. We knew the booklet
could end up being all around
the state of North Carolina
and at that point I was not
comfortable acknowledging that
it was my body going through
such a difficult
transformation. Today, the M:TA team has decided it is time to take
“Denise” out of it and I
will from this point on be
using my name in the booklet
and on the website. Changes will probably
not take affect until the Fall
of 2006.
I
feel proud of this decision
and I have all of you to
thank. The family, friends,
colleagues, health care
professionals, breast cancer
patients, and survivors as
well as many of you who I have
met along this journey - it is
you that has given me the
strength to show what my body
has been through and feel
comfortable with how I look
today. Thank you.
I
encourage you to read through
this first newsletter and
really become a part of what
the M:TA team is up to. If you are not
interested in receiving these
newsletters, please just reply
and ask to be removed- we will
happily erase your e- mail
from our list.
~Debbie
Horwitz, M: TA Project Creator
and Breast Cancer Survivor |
| M:TA
Booklet Update |
|
The
Myself: Together Again booklet first came out in April of 2006.
The weekend before it
came out there was an article
in the Raleigh paper, (The
News and Observer), that told
my story mainly, but the
writer also touched on who the
booklet was intended
for. (Visit this link to
view the article online:
News
& Observer Article, April
9, 2006)
The writer who
wrote that story did a
wonderful job of telling how I
was affected through my breast
cancer and most importantly
through the reconstruction.
However, much of the
story about how the booklet
came to be was not mentioned
in that article. For example, Cornucopia
House Cancer Support Center, a
501 C-3 organization in Chapel
Hill, North Carolina helped
this project in a tremendous
way. They partnered with us
in the beginning so that we
would be able to write a grant
to Susan G. Komen. Their partnership and
support has allowed M:TA to do
things that otherwise would
have taken years to happen.
Also, the writer who co-wrote the booklet with me,
Beth McNichol was not
mentioned in the article and
she was a wonderful person who
really gave the booklet a lot
of depth and perspective.
It
has been difficult not being
able to tell those of you who
have been following M:TA’s
progress, that there were so
many people integral
to this process - so thank you
for letting me share a few
names. Also, when the booklet
came out in April, many of you
on this list serve e mailed us
wanting copies of the booklet
sent to you. Unfortunately, the
grant was written in such a
way that the booklets are only
to be distributed to health
care settings and providers
such as hospitals and
physicians offices, so we were
unable to ship them out to
folks directly. The counties we focused
on in this grant are Wake,
Durham, and Orange so we
have made a big effort to get
them in as many places as
possible for patients and
caregivers to be able to pick
them up.
Currently
the booklets can be found at
the following locations*:
-
Rex
Cancer Center, Raleigh, NC
-
UNC
Lineberger Comprehensive
Cancer Ctr./ Patient and
Family Resource Center,
Chapel Hill, NC
-
Durham
Regional Hospital/ Dr. Lee
Wilke, Durham, NC
-
Duke
Hospital/ Dr. Linda Sutton
and Dr. Lee Wilke, Durham,
NC
-
Duke/Raleigh
Hospital, Raleigh, NC
-
Wake
Forest University Baptist
Medical Center, Winston
Salem, NC
-
Dr.
Donald Oschwald/
Specilaist in Plastic
Surgery, Raleigh, NC
-
American
Cancer Society/ Look Good
Feel Better Coordinator
Greta Schiffman
-
Dr.
Faust/Wake Surgical,
Raleigh, NC
-
Cancer
Centers of North Carolina/
Cary office, Cary, NC
-
Dr.
Graham’s Office/ Waverly
Hematology/ Oncology,
Cary, NC
-
Angel
Hair Wig Gallery
-
Cornucopia
Cancer Support Center
-
Atrium
OB/GYN/ Dr. Zimmerman,
Raleigh, NC
*
There are a few other
physicians who have booklets
as a reference, but they do
not yet have quantities to
distribute.
We
hope you will visit one of
these locations if you are
interested in getting a
booklet. If you do not see your
doctor or practice on this
list please write to me at
info@myselftogetheragain.org
and we will contact that
office and ask them if they
will carry the booklets.
We still have some
visits to make in Durham and
Orange County so we will
update you as we add to the
list.
Noticias
Emocionantes!
The
booklets will be available in
Spanish in August. |
| M:TA
Website Update |
|
Because
we want all
women who are considering
breast reconstruction to have
access to the booklet, the
M:TA team developed a website.
In early June of 2006,
we officially launched www.myselftogetheragain.org.
Please visit the website to
see the booklet on line and to
learn more. The pictures that you
see on the website are the
same pictures that exist in
the booklet, but we feel it is
easier to view the booklet
then it is to see the pictures
on the website. The detail in the
pictures looks better in the
booklet and there is a little
more text in the booklet as
well. We are pleased that the
website is available and we
hope you will review it and
give us feedback.
If
you would like to link to our
website or have us set up a
link for your site please
contact our web designer at beth@bartoncreekproductions.com. |
| Events
and What's Coming Up |
We
had a few fundraisers for the
project in 2006. You can see those on
the website by clicking on the
“Events” page. They were a success, and we needed and appreciated all the support.
During Race for the
Cure, we also received
donations and they have helped
us to do so much - Thank you!
In the next newsletter
we would like to list those
people who have donated to
M:TA - we feel they deserve the
recognition.
In
the next few weeks, Ivanhoe
Productions will be sending
out the story they did on M:TA
to their 250 affiliate
networks. Those networks will air
the story at various times.
To see if you are in a
city that is affiliated with
Ivanhoe, go to their website at
www.ivanhoe.com, scroll down, and click on
the left side where it says
“Our TV partners.” We do not know when the
stories will air, but we have
been told to regularly Google
Myself: Together Again to see
where the story was shown.
We are excited about
this. It was fun to do the
story and it will be M:TA’s
first TV appearance.
The
networks that run the "
Smart Women" series are
the ones that will feature
M:TA. We are trying to keep
track of where the stories
have run so far; we know on
July 12th the story ran in
West Palm Beach Florida, and
July 20th in Austin, TX.
Click
here to see story.
We
recently have had some other
requests from magazines and television shows but so far we
have not committed to
anything. Stay tuned…. We will
keep you in the loop!
On
September 14th at
Angel Hair Wig Gallery in
North Raleigh, Debbie will be
speaking about her experience
and giving out copies of the
booklet to women. All are welcome. The event is from 7-9pm.
So,
the M:TA project team has a
lot of wheels spinning, but we
think that is a good thing.
It has been a fun and
exciting 2006 so far and we
will continue to present the
booklet and get it into as
many places as possible. Please
contact us at info@myselftogetheragain.org
if we can be of any assistance
to you.
Thank
you for you support,
Debbie
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